Occupational Therapy and Duchenne Muscular Dystrophy. Kate Stone, Claire Tester, Joy Blakeney, Alex Howarth, Hether McAndrew, Nicola Traynor, Mary McCutch

Occupational Therapy and Duchenne Muscular Dystrophy



Download Occupational Therapy and Duchenne Muscular Dystrophy



Occupational Therapy and Duchenne Muscular Dystrophy Kate Stone, Claire Tester, Joy Blakeney, Alex Howarth, Hether McAndrew, Nicola Traynor, Mary McCutch ebook pdf
Publisher:
Language: English
Page: 272
ISBN: 0470510307, 9780470510407

From the Back Cover

Duchenne Muscular Dystrophy (DMD) is the most common and usually most severe form of muscular dystrophy. It is an inherited disorder, caused by a defective gene and rapidly progresses to muscular weakness and skeletal deformities, which contribute to frequent breathing and heart disorders. Increasingly, occupational therapists (OTs) are called upon to work with those with the condition and their family in the early stages of DMD, and then through to the middle and late stages. Written by experienced OTs with a specialist interest in DMD, the book:

· Provides a medical overview and the OT process for working with people with DMD
· Examines the psychosocial and emotional impact of DMD
· Includes case studies of four young men living with the condition
· Details the care needs of the individual from pre-school to young adults living independently
· Looks at issues of moving and handling, community care, leisure, housing, education and employment
· Discusses the role of the hospice, anticipatory grief and bereavement.

This practical guide is a resource that facilitates a flexible and informed clinical approach to occupational therapy with this client group. It will assist occupational therapists in all practice settings, healthcare professionals and provide a reference for referral for doctors. It also provides useful information for the families of young people with the condition.

About the Author

Joy Blakeney, Dip COT, Senior Practitioner, Paediatric Community Occupational Therapist, formerly of West Lothian Council Social Work Department.

Alex Howarth, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.

Ruth Johnston, BSc (Hons) Occupational Therapy, Senior Occupational Therapist – Child Health, NHS Fife.

Heather McAndrew, BSc (Hons) Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Borders.

Mary McCutcheon, Dip COT, Senior Paediatric Occupational Therapist, formerly of Ashcraig School, Glasgow.

Kate Stone, Dip COT, MSc (MedSci) in Palliative Care, Senior Practitioner, Paediatric Community Occupational Therapist, Inverclyde Council Social Work Services.

Claire Tester, Dip COT, PG Dip, AHP Consultant in Cancer for Scotland, Scottish Executive on secondment from the Children’s Hospice Association, Scotland (CHAS).

Nicola Traynor, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.



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